Showing posts with label mom. Show all posts
Showing posts with label mom. Show all posts

Friday, August 1, 2014

Safe at Home

The Boys of Summer continues to roll along, but we need your help to complete this year's journey. Please see our site for the latest on how to contribute. Thank you!

In March 2014, we rekindled the adventure we began ten years prior. My dad, with Parkinson’s, and me, with a camera or two, came together around baseball and went on a journey. In 2004, the journey was simpler to define: we road-tripped 20,000 miles in two months to see a game at each of the 30 MLB parks. In 2014, the initial idea was to do it again. Because of financial and physical limitations, we decided to pare the idea down to the six parks built since 2004. When the limitations became tighter on both fronts, we changed directions.
Dad broke through many walls this summer - most more metaphorical than this one.


My dad was signaling that he was giving up. The red flag for all of us ­­was dad’s lack of interest in golf and his admission that the pain in his back had become nearly debilitating. His doctors had told him there was nothing more they could do beyond prescribing more pain medicine. My mom was scared to the point she fell into another depression.

Dad plays with his grandson, Giuseppe.

Through searching for alternatives, a friend suggested I give Dr. DeMartino of Superior Health Solutions in Henderson, NV a call. We exchanged information, then discussed opportunities. He liked what he saw in our original documentary enough to offer my dad pro bono treatment at the clinic. He was confident he could relieve some of the pain and bring my dad to a greater degree of health. It wouldn’t be easy, though. Dad would have to come to Las Vegas for an extended period of time, estimated at two to three months. Dad said yes.

In late April, Dad said yes. I’ve been blogging about this process over the last three months in detail and there is more to come still. I want to cover the last day right now and a few thoughts on what the future holds.

One goal achieved. Next up.
Mom worked through her depression and came down to join my Dad in Las Vegas in early June. She went home for a brief period of time, then stayed for the last six weeks. Living conditions weren’t always the easiest or most comfortable for them in their extended stay hotel, but they managed. There were many ups and downs in the treatment. There was great skepticism at times and great hope at others. The constant physical sign of health was my dad’s weight loss through nutrition and supplementation. He lost nearly thirty pounds and reached his goal weight of 175 pounds in the final week. He displayed signs of increased health, vitality and enjoyment in his activity. He suggested social events and dates with my mom as opposed to holing up in a room and tuning out with television or his laptop. He said yes to road trips to Zion and Los Angeles. He braved a boxing ring, the Pacific Ocean and some water slides. He played with his grandkids. He emerged, three months later, a healthier man.
Dad plays with his granddaughter, Francesca.

For those looking for a cure to Parkinson’s here, I suggest you look elsewhere. It’s the wrong line of thinking as far as I’m concerned. As to whether or not those working on a cure for it will ever find one, that’s well beyond me. “Ever” is a long time. I have serious doubts about some, if not many, traditional western medical institutions, foundations and pharmaceutical manufacturers because their loyalties, in my examination of them, often following the dollar, seem to value that dollar or system that is supporting them long before the individual. I can say, with certainty, I believe in the power of the human body to heal itself. I believe it is doing exactly that on a daily, combatting much of the toxicity we introduce to it, both knowingly and unknowingly. I believe our bodies can be overwhelmed and that we do sometimes need help in evaluating our health, as we can easily become locked in our silos of self and blind to the things that we are in control of versus those we are not.
 
My Mom and Dad went home yesterday, July 31, 2014. My mom cleaned out the old food they had been eating and they both pledged to “protect their home” from unhealthy foods, recognizing their damaging effects back in June. My dad, who began his treatment with a 55-degree tilt in his spine and ended it with a 49-degree tilt, is committed to a more vigorous, physically active lifestyle. Dr. DeMartino repeatedly remarked how strong my dad’s body was, despite the PD or the massive curvature in his back. That encouragement, along with the weight loss and a renewed acceptance of himself as an athlete, has driven my dad forward.

Our journey is not over. We still hope to get to the six new ballparks built since 2004. We love our Oakland A’s and will cheer our lungs out for them to finally push through and not only get to but win a World Series for the first time in 25 years. Mom and Dad have much work to do, as do I. When will the film come to light? That’s beyond me right now. Too many questions. It will be seen at some point, when the time is right. I am working up my case for the next ask and I will write it soon. I hope you will join those who have already contributed to our mission, understanding, now more than ever, that we have proved the concepts we have put forth, worked diligently and professionally and are very worthy of your financial support.


The biggest difference between now and when we began in the early spring is the presence of hope. My Dad knows he can’t cure Parkinson’s, nor is he even remotely interested in seeking one out. That’s out of his control. He has quit looking. He is interested in making the most out what he has, Parkinson’s – not my Dad -- be damned. His body is much more willing than he previously thought and now so is his mind. The last action he took with Dr. DeMartino yesterday was to take a brief jog with him around the parking lot of DeMartino’s office. The idea of running again, something my dad identified very closely with for decades, was not on the list of hopes when we began this process. It emerged naturally through perseverance, saying yes and a happy accident. Look for Dan Cochrane jogging on a block near you, Walnut Creek, CA.

I am deeply proud of my parents for accepting their challenges head on and fighting back, for not listening to the naysayers, even professional and very well-educated ones, who told them they were on a fool’s errand. Contrary to popular, and I believe often well-meaning advice, “never quit” is not a philosophy I subscribe to. There is a time to quit – whether it’s a belief system, relationship, job or anything else dragging one down or causing you to lose focus. Holding on to too many things is far more dangerous and detrimental than quitting, reevaluating and harnessing one’s energy.


Mom says goodbye. Dad encourages her along.
The journey continues.

The Boys of Summer roll along, but we need your help to complete this year's journey. Please see our site for the latest on how to contribute. Thank you!

Sunday, January 29, 2012

Boys of Summer Book - Entry #154


April 30, 2006 - Bob
Walnut Creek, CA

The day mom and dad got back, mom said “I’m just going to lie down for a moment”. It seems like a natural enough thing to say unless you understand my mom. She has code words/phrases/actions that indicate she’s feeling depressed. The weird thing is she says or does them and doesn’t see the connection. Annamaria and I knew right away what this meant: she’s probably going down for a while.

May 1, 2006 - Mom
Walnut Creek, CA

Overall, I did enjoy Florida very much. The Keys were beautiful. It was hard when dad was in such pain with his hip and back.

When we got back Esther (our neighbor of 31 years and very close friend) was scheduled surgery. I am very scared about that. She’s like an older sister to me.

Bob asked me about my lying down in bed during the day. He said he was concerned I may be going into depression. I’ve made an agreement not to sleep in my bed during the day as that’s been an indication of my depression in the past. I honestly just felt tired. 

June 1, 2006 - Mom
Walnut Creek, CA

Esther and Suzanne (neighbors) were talking to me a lot -- doing some praying. They are very concerned for me. (My sister) Denise’s e-mail scared me. I feel like I am frustrating everyone. I’m scared I may lose everyone. I don’t know what to do. I definitely don’t want to go back to Kaiser.

Friday, January 6, 2012

Boys of Summer Book - Entry #134


September 22, 2005 - Bob
Los Angeles, CA

We have been receiving phenomenal support. There have been some wonderful additions to the project. The Michael J Fox Foundation is now officially on board alongside the National Parkinson Foundation -- getting them to coexist is really something (see below). Though they represent the same illness, they have different approaches as to how to spend the money they receive. In a nutshell, Michael J Fox Foundation is 100% research-based in search of a cure. The National Parkinson Foundation divides it’s money in to research as well as care for those who now live with the disease. There is no right or wrong here and I greatly appreciate both groups willingness to stand by one another with this film.

Great, great, great stuff.

So...our thought is to continue on the marketing front for now -- seeking out individuals who will champion the cause. Hopefully a nice stack of letters will go a long way to helping us be seen where we need to be seen.

I was speaking to my dad a few weeks ago and he sounded very small and distant, as he gets when he is sad, angry or frustrated. They had just begun a massive kitchen remodeling project and right as it began, my mom went into a deep depression, meaning she is not available to manage the project she set up. My dad really hoped to do nothing more than sign the checks. Stress is particularly damaging to him now with Parkinson’s. This is one of the areas where the cognitive effects of his disease come into play. He can’t process things the way he’s used to and he’s aware of it. Then he gets frustrated by that and the vicious cycle continues to spin.

I drove up to see my parents and check things out firsthand. It was as if the house I grew up in was suddenly under a dark veil. The kitchen being torn out is a dramatic thing no matter what mental/spiritual state any house and its inhabitants are in. But because my mom and, therefore, my dad, were both in such a weakened state, the entire house felt as if it were nearly lifeless.

Mom had been down for several weeks already and it was really stressing my dad out. What I mean by mom being “down” is that she literally doesn’t get out of bed but for 15-30 minutes a day. She’ll get up, get a little something to eat, often say something about an upset stomach and that she needs to “go lie down for a moment” then be gone again for several hours. To be clear: she’s not making this illness up. She really does vomit and goes through all the physical pain she’s describing. So far as I can tell, there’s nothing anyone can do for her. My dad, on the other hand, is dealing on a daily basis and trying to avoid a depressed state himself. He could use the support. He really needs my mom, but she’s checked out.

After much soul searching, I knew I couldn’t be a whole lot of help from a distance. I asked my dad if he wanted me to move up to help out. My dad, as I’ve said before is a very proud man and has a very difficult time asking for anything. He said “yes” without hesitation.

It was a relief and quite scary at the same time.

The next big call was to Annamaria. How was she going to take this? She was just getting into a relatively new job she’d been working as a massage therapist. She was making good money and finally enjoying Los Angeles (no small feat for her). When I asked her what she thought, she didn’t hesitate either: “Let’s move up there”. I’d loved her for nearly three years at that point -- but never had I loved her more than when she answered so selflessly and supportively.

This is a big change and very sudden, but one I am very honored to have the ability to make.

Saturday, December 31, 2011

Boys of Summer Book - Entry #128


Well...a rough cut was made, though yours truly was the chief architect/editor. Mike is a great guy and an excellent editor -- his time is just not available right now as he's getting married. In all fairness, doubling his rate would have left him with the same amount, so I can understand where his loyalties may be.

I sloughed through it and REALLY enjoyed what I came out with. I showed it to my mom, dad and Annamaria in the Bay Area and got some excellent feedback. There were some blank looks and questions from time to time, but that’s okay (when I say rough, I mean it; for instance there were whole five-minute long sections with no audio. In my mind, I hear the dialogue, the voiceover, the score and the background in perfect harmony. Mom, dad and Annamaria are left with my descriptions of such things).

I am now recutting and moving forward. Mike may do some work after he gets back from his honeymoon, but that's a solid month away. In the meantime, I'll be adding, subtracting and keeping an eye on upcoming festival possibilities.

We received a fee waiver from the Seattle Film Fest. It takes place in late May/Early June. They need my cut at the end of the week. They said it’s okay if it’s rough. Okay...

Next up on the docket is an A's game in Oakland (for the final scene/denouement) -- this will wrap the movie, so dad can talk about his Parkinson’s, the progression of it and the incredible need to do things when the time is available rather than the ubiquitous "tomorrow". Our wrap-up game was scheduled for April 17th vs. the despised Angels of "Los Angeles/Anaheim" (Booooooooooo...), but, because of the Beverly Hills Film Fest (which Annamaria and I are very happy to be part of with “Luckey Quarter”), we'll be down in L.A..

As a matter of fact, Annamaria and I are loading up the trucks and moving to...well, not Beverly Hills, but Mar Vista (near Venice/West L.A.) at the end of this month. We’ve both lived in L.A. previously (before we knew each other). I have found the Vegas market has simply dried up when it comes to what I’m trying to accomplish film-wise. I need the challenge and the opportunities L.A. has to offer.

As for our wrap-up game for “Boys of Summer”, we’re now looking at May first versus the Mariners. Fingers crossed that all works out. It’s a wonder I don’t have arthritis with all this finger crossing.

After that we’re hoping for a Bay Area friends and family screening at the Parkway Theatre in Oakland. They’ve screened several other films of mine and one of their programmers, Will Viharo, has always been kind to me. I know we'll pack the house.

Monday, November 28, 2011

Boys of Summer Book - Entry #102

100% proceeds go to the Michael J Fox Foundation. 

Aug. 11, 2004 - Bob
Walnut Creek, CA

Got just a few hours of sleep and woke to the news that my grandfather (dad’s dad) is in the hospital with encephalitis. Apparently it’s quite painful, but not life threatening. This, on top of mom’s health, has really made for a pleasant “wake up and smell the OJ” morning.

Dad and I talk about the practical measures -- are we going to the A’s game today? I feel almost silly asking. Our schedule has us going to the game, then immediately rolling out to Seattle so we can catch our afternoon game there tomorrow (big crowd and big party waiting).

But, in light of everything going on...

Dad decides the A’s game today is a good idea. I’m really glad. I’m hoping this will provide him and I with a little familiar smile. This is our home park. These are our beloved A’s. Jonny O  is covering the game for the local newspaper and maybe we’ll get to see him at the game. The A’s have provided excellent tickets for us (thank you, Detra Page).

So we go...
Aug. 11, 2004 - Dad
Walnut Creek, CA

The next day Bob and I go to the Oakland game and I have to admit I don't think my heart was in it. On top of that the A's got blown out.
Bob:

ONE GAME. We get to see “our boys” for ONE GAME out of the thirty-two we’ve seen (including the AAA in Vegas and the extra game in Houston) and what do they do? Nada. Zip. Three runs of worthlessness vs. 11 TITANIC BOMBS BY THE TIGERS!! Dramatized? Sure. That’s just how it feels.

Jonny O says this is perhaps the worst game they’ve played all year. Glad to be on board, fellas.

We leave early from a game for just the second time on this trip and, though I hate doing it, I think it is the right decision. We’ve got this roadie to Seattle -- a 12-hour jaunt -- staring us dead in the chops and the mental state (for any of us) was not strong to begin with today. As of right now we (and that includes Mom and Emma) are going...I hope that’s the case when we get home.


Park Number 28 (of 30), Networks Associates Coliseum

Detroit 11, Oakland 3
WP: W. Ledezma (2-0)   LP: M. Redman (8-9)

Sunday, September 18, 2011

Boys of Summer book Entry #43

The Boys of Summer continue roll along - for the latest please see our website.
 
Interviewing Mom (In Dallas) * June 26, 2004

Bob:
What’d you think of the news tape videos?

Mom:
I thought they were great. I thought it showed your purpose, what you’re doing, your love of your father, which is special.

Bob:
What do you think about the degeneration dad is going through because of Parkinson’s?

Mom:
Breaks my heart. Absolutely, breaks my heart. Even not being with him for a week, probably because I’m with him all the time, I can see the degeneration. I always knew it was there, but i’m used to being with him all the time. And I think that’s why it’s so hard to be separated from him because there will be just more and more degeneration.

Bob:
When did you first begin to notice the changes in dad?

Mom:
Well it was such a hard time because I was diagnosed with breast cancer and he was  diagnosed a week later with PD. So the reality was that my disease took immediate steps with surgery and chemotherapy. And dad took the role of caretaker for me. I think that took the eyes off of him. What I noticed about him, even at that time, was that his gait was different. I could hear him walking and hear the sounds his steps were making on the hardwood floor. I was probably too consumed in my own world at that time to notice that first, but I began to notice more and more. I noticed the facial, the lack of facial expression.  The smile, with one side of his face drooping down. The slowness of his left hand. And then the whole body being so much slower. The thought processes being so much slower. The stamina, not having the stamina he used to have. Not being able to complete tasks. He’s a very handy person and he likes to fix things. But things are much harder for him to do. And I think he loses interest, so...I don’t know...I was just watching it happen. It probably took a whole year of watching for me to realize, because I was so consumed by my disease, the differences. I’d say, we’re into the third year now, over the last year I’ve noticed some marked differences and they seem to be progressing. And I don’t know -- they seem faster to me. Maybe because I’m so much more aware, I watch him more closely. And I’m just heart broken -- I’m absolutely heartbroken about this disease.

Bob:
What does baseball mean to you?

Mom:
Baseball makes me smile, and mainly because of you. When I grew up, my father loved baseball. And he was always listening on the radio. We’d be listening to the Raineers who played at Sick Seattle Stadium, it was not a Major League team. And we just loved baseball. He was a coach for my brothers. There was always baseball around our house.

I got into the A’s, mainly when you and Jonny O would go to the games. Of course we had the great Bash Brothers and, you know, it was getting more and more fun to watch. Then you taught me how to read the box scores. And I really got into it. And when I went to work, I’d turn the game on the radio. I’d come home from work and I’d tell dad, “You’ve got to turn on the game.”

I really, really enjoy the game now, too. I’m not as avid of a fan as you and dad, but I do enjoy the A’s. I love the story of our team. I’m looking forward to seeing the other stadiums. I think it’s a great game and I love that it’s a great game for families. Moms, dads and children there. It’s kind of that  fourth of July, apple pie, American -- it’s our game. And I feel very proud to be an American and be at a game and have a hot dog and root for our team. It’s a great, great thing and it makes me very happy.
Bob:
Do you have a favorite player?

Mom:
Eckersley was my guy back in the late 80’s. He was such a great closer. Your heart was pounding and you’d just know he was going to do it.

Bob:
What do you think about having to take care of dad?

Mom:
I honestly get fearful that I won’t be able to do it. He was there for me when I had cancer and I so much want to be there for him. I want to be there in positive ways. I tend to over nurture him and bug the heck out of him. I want to be the kind of caretaker that he needs and wants. It breaks my heart. I just have to pray that we’ll have some research in his lifetime that he will be able to experience some help.

My plan is to take care of him as long as I can in our home. Put a ramp in the family room, do whatever I have to do. But right now, what I need to do is live one day at a time. I need to make myself strong, build my physical strength up and my mental strength for him and for myself. It’s sad because I even see now that I’m losing part of him and it breaks my heart. He’s the love of my life. I’ve been in love with him for 40 years. But I’m grateful for every day we have together. And I want to make them count. I want to have fun, I don’t want to make things change so that he feels like he’s an invalid.

We’re going to get into a support group -- we’ve got to read and learn, meet lots of people. Who knows what this trip is going to mean? Just look at the people we met Friday night. Wow. To talk to Mitch was comforting to me. He’s had the disease about the same amount of time and he’s on a different medication so maybe it’s not so scary for dad to move on to the next level. But you know we’re going to keep rockin’ and rolling and singing and dancing and -- it may be chair dancing, if we have to. He was so sweet last night, when we were at Pete’s, he said: ‘I’m so glad we didn’t miss many rock and roll dances in our lifetime. That’s very important to us. And...we may be doing chair dancing for a while, but that’s okay.

Bob:
Do you think you might give dad lap dances?

Mom:
(laughs)
Yeah. That would be his dream.

The Boys of Summer continue roll along - for the latest please see our website.