Boys of Summer Book - Entry #126

You can see the complete film "Boys of Summer" for free by clicking here. 

100% proceeds go to the Michael J Fox Foundation. 

February 13, 2005 - Dad

Walnut Creek, CA

I had my most difficult night sleep, terrible anxiety in my arms and shoulders. Paulette is not able to drive again today. Because it is Sunday the traffic was not bad. The treatment was moderately painful. My legs feel good. My hands and arms remain quite slow and anxious.

February 14, 2005 - Dad 

Walnut Creek, CA

Another very difficult night trying to sleep. Paulette was unable to drive so I did. I know it sounds redundant but I think today’s treatment was the most painful so far. Edward sold me some herbs that are supposed to help with tension and anxiety.

February 15, 2005 - Dad 

Walnut Creek, CA

I remain sleep challenged. Paulette can’t drive today and I don’t feel up to it so I guess no treatment today. Happy Birthday to Paulette.

February 16, 2005 - Dad

Walnut Creek, CA

I think Dr Feng is a very skilled and passionate acupressure/Chinese medicine provider. If I had experienced any improvement during the treatment might have found a way to continue. But the combination of the pain, the driving (50 miles round trip) and the expense ($50 per visit) along with the lack of progress made it difficult to continue. There is always that thing about "giving up". But DR Feng started by saying I would notice a change/improvement after 10 visits, then 15, then 20. I went 23 times and that was it.

Boys of Summer Book - Entry #123

You can see the complete film "Boys of Summer" for free by clicking here. 

100% proceeds go to the Michael J Fox Foundation. 

January 30, 2005 - Dad
Walnut Creek, CA

Sleep was restless. Today is my 10th treatment and I have to admit I would like to have more progress to report. The treatment was moderately aggressive. Edward asked me to chart daily before/after treatment how I feel in parts of my body. He said my immune system is not yet functioning properly and that I should come 5 more days in a row. I felt less anxious last evening for the first time in a while.

January 31, 2005 - Dad
Walnut Creek, CA

Sleep was slightly better last night. I brought my progress chart to the clinic. Edward was enthusiastic about it. He suggested a few changes and referred to it during my treatment. The treatment was the longest and most painful to date. I am having a very difficult time walking because my feet are so sore.

Right now my confidence and hope are at an all time low. I notice very little if any progress, my feet hurt and I find it very difficult to sleep. I’m considering not going in for treatment tomorrow. I noticed when I go home that I could smell the Chinese tea brewing. Loss of the ability to smell is one symptom of PD.

February 1, 2005 - Dad
Walnut Creek, CA

I was not certain when I got out of bed weather or not I would go for my treatment. I began to feel better so I went and was glad I did. The treatment was painful but I felt better. I got my hair cut on the way home. I hobbled in to Great Clips where the girl/barber took one look at me and without asking charged me the senior rate for 65+ year-olds. For the record, I’m 61.

February 2, 2005 - Dad
Walnut Creek, CA

Sleep was interrupted by the usual anxiety. Why should I expect any change? Today is Groundhog Day. I would like to get off the Mirapex ASAP but I continue to have fairly strong reactions to my last reduction. The treatment was moderately painful. Harriet was in for her 21st treatment. She continues to have a very difficult time. I’m thankful for the progress I’ve made.

The Pope was in the news today with health problems. I asked Edward if he thought he could help the Pope. He said “no one ask me”.

Boys of Summer Book - Entry #122

You can see the complete film "Boys of Summer" for free by clicking here. 

100% proceeds go to the Michael J Fox Foundation. 

January 28, 2005 - Dad

Walnut Creek, CA

Did not sleep through the night. I am looking forward to reporting a good night sleep. All of the people at the clinic that I have asked say that their sleep has improved dramatically with treatments. Today the treatment was the most intense yet. I was able to endure it with only a faint cry out. No change in my condition apparent. 

Today Norm and Sandy are in for treatment. Norm remarks again about my improved appearance. Some people distracted Edward with a court order wanting to do an inspection of his property.   

January 29, 2005 - Dad

Walnut Creek, CA

Once again I had a restless night. Today is my 9th straight day of treatments and I am trying to measure my progress. It is difficult because I have cut my use of Mirapex by 1/3 since starting treatments. My anxious feeling and tension in my shoulders, arms and legs confuse the results. Today’s treatment was the most painful so far. It is difficult to walk because my feet hurt so much. 

Diane introduced me to her husband, Larry who has been successfully treated by Edward. Each day I find it easier to stick to my diet. 

I received an e-mail from the PRP today:

Dear Dan,

Thank you for your inquiry.  My sincerest apologies for the delay.  I accidentally placed your e-mail in the “already answered” file, and just noticed the error. 

Before we set an appointment for you, please complete the attached “Prospective Patient Questionnaire” and e-mail it back to me at your convenience.  

Thank you,

Chris

I think I will wait until I am completely off medication before I fill out the questionnaire.

Boys of Summer Book - Entry #121

You can see the complete film "Boys of Summer" for free by clicking here. 

100% proceeds go to the Michael J Fox Foundation. 

January 25, 2005 - Dad 

Walnut Creek, CA

I slept better last night. My legs feel heavy today. I think I started my exercises too aggressively. I’ll cut back to one set for a while. 

I met Diane at the clinic today. She is one of the friends of Monica Cooke whose story got me interested in Edward. She has been seeing him for over a year. She had a form of eye cancer and was scheduled for surgery on both hips. She was not able to walk a single city block. Today her eye cancer is gone and she walks without pain. A mile walk is no problem. She never had any surgery. 

I saw Norm for the first time in a few days and he said he noticed improvements in my voice, walk and appearance. The treatment was more vigorous and painful today but I was able to accept it with out resisting. Edward was telling Norm that if he wanted to improve his results he should cut his food intake in half. He says that fasting is good way toward health. When the body has more food than it needs it can support enemies such as tumors. When the body is deprived it protects its’ vital organs and starves the enemies.

January 26, 2005  - Dad

Walnut Creek, CA

I awoke at 3:30 a.m. feeling anxious and ended up taking an Excedrin PM and slept until 7 am. If that happens again tomorrow I’ll try doing exercises. Today the treatment was a little lighter. Edward remarked about the redness in my eyes and face. He suggested I go home and do some relaxation exercises such as casual walking and rest. I also learned it is ok to use organic ginger, garlic, green onions and brown rice vinegar. 

I met a Russian couple. I cannot remember their names. When I introduced myself to the husband he remarked  “you can’t get treatment anywhere in the world like here”. It turns out that when he started treatments he had a tumor the size of a grapefruit, a recent test showed the tumor had shrunk by 50%.

January 27, 2005 - Dad

Walnut Creek, CA

I am unable to sleep through the night. I am looking for ways to make my diet more appealing and not go outside the rules. The gallon of tea a day is difficult to get down. I was 16 oz short yesterday. At the clinic today getting a treatment was Mr. Wong, an old friend of Edward’s. They spoke in Chinese and seemed to enjoy the conversation. My treatment was vigorous. I don’t notice much change in my condition from day to day.

I still feel like my body is adjusting to the last reduction in Mirapex. I have bouts of anxiety and tension.